How I Made It: A Caregivers Guide to Coping With Cancer

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Proportion and number of cancer cases and deaths attributable to potentially modifiable risk factors in the United States. CA Cancer J Clin. Palliative Medicine and Decision Science: The critical need for a shared agenda to foster informed patient choice in serious illness. Journal of Palliative Medicine. Epub Sep 6 Interpersonal influences on patients' surgical decision making: the role of close others.

J Behav Med. Qual Health Res. Caregiver burden, patients' self-perceived burden, and preference for palliative care among cancer patients and caregivers. Physician-patient-companion communication and decision-making: a systematic review of triadic medical consultations. Patient Educ Couns.

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J Am Geriatr Soc. Treatment decision-making in chronic diseases: What are the family members' roles, needs and attitudes? A systematic review. Hidden in plain sight: medical visit companions as a resource for vulnerable older adults. Arch Intern Med.

DiMatteo MR. Social support and patient adherence to medical treatment: a meta-analysis. Health Psychol. The role of families in decisions regarding cancer treatments. Autonomy-related behaviors of patient companions and their effect on decision-making activity in geriatric primary care visits.

Soc Sci Med. Advance directives as acts of communication: a randomized controlled trial.


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The impact of advance care planning on end of life care in elderly patients: randomised controlled trial. Advance care planning and end-of-life decision making in dialysis: a randomized controlled trial targeting patients and their surrogates. Am J Kidney Dis.

The Caregiver's Perspective: Coping, Fear, Anxiety, and Resentment

J Pain Symptom Manage. Effects of advance care planning on confidence in surrogates' ability to make healthcare decisions consistent with older adults' wishes: Findings from a randomized controlled trial. Am J Hosp Palliat Care. Improving decision-making for feeding options in advanced dementia: a randomized, controlled trial.

N Engl J Med. Effectiveness trial of an intensive communication structure for families of long-stay ICU patients. Effect of communication skills training for residents and nurse practitioners on quality of communication with patients with serious illness: a randomized trial. Effect of a quality-improvement intervention on end-of-life care in the intensive care unit: a randomized trial.

Helping Care for a Loved One with Cancer

A randomized trial of two methods to disclose prognosis to surrogate decision makers in intensive care units. A communication strategy and brochure for relatives of patients dying in the ICU. Questions to improve family-staff communication in the ICU: a randomized controlled trial. Intensive Care Med.

Helping Care for a Loved One with Cancer

Evidence-based palliative care in the intensive care unit: a systematic review of interventions. J Palliat Med.

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Consolidated criteria for reporting qualitative research COREQ : a item checklist for interviews and focus groups. Int J Qual Health Care. Patton M. Qualitative research and evaluation methods: Integrating theory and practice. Thousand Oaks, CA: Sage; Braun V, Clarke V.

Using thematic analysis in psychology. Qualitative Research in Psychology. View Article Google Scholar Content analysis and thematic analysis: Implications for conducting a qualitative descriptive study. Nursing and Health Sciences. Saldana J. The Coding Manual for Qualitative Researchers. Washington DC: Sage; Third ed. Thousand Oakes: Sage Publications, Inc.

Prostate Cancer: A Caregiver's Guide

Lincoln Y, Guba E. Naturalistic Inquiry. Using reflexivity to optimize teamwork in qualitative research. Triadic treatment decision-making in advanced cancer: a pilot study of the roles and perceptions of patients, caregivers, and oncologists. Support Care Cancer. Health Aff Millwood. Conceptualizing how couples talk about cancer. Health Commun. J Clin Oncol. Am J Geriatr Psychiatry.

It uses real-life stories to discuss the issue of caregiving in the context of major changes - both policy and practice - to our health care system. Its essays cover the financial impact of caregiving, resolving conflicts with the health care team, models of innovative caregiving, and a review of government policies that affect family caregivers. Look for empathy in this book, written by the former first lady. Rosalynn Carter thinks caregiving is such a critical issue that she has established an institute to research policies and practices.

Using real-life caregiver stories, the authors demonstrate that caregiving has meaning and purpose, especially when caregivers get the support they need. Holland, MD and Sheldon Lewis. Psycho-oncology pioneer Jimmie C. Holland, MD, guides people with cancer and their caregivers through all aspects of the experience including strategies for coping with anxiety, communicating with the health care team and living with uncertainty. The author also includes discussions of the psychological effects of radiation, surgery, transplants, and other treatments.

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Although caregivers are not the book's main audience, they will likely find its insights and information useful in understanding the experience of their loved one. Dealing with difficult conversations is the substance of this book, from times caregivers may not know what to say to times that call for tough conversations. Babcock's suggestions, along with practical resources, support clear communication between patients and the people who love them.

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